IatrogenicBotulism.com is a source for education, resources, and support related an under-researched and often misdiagnosed disease: iatrogenic botulism.

 

Iatrogenic Botulism is botulism that occurs after botulinum toxin injections, including Botox, Dysport, Xeomin, Daxxify, Jeuveau, and Letybo (U.S. products). Botulism is nervous system disruption that occurs when botulinum toxin spreads away from the injection site into the peripheral nervous system (PNS) and/or central nervous system (CNS). Botulism can occur in mild, moderate, or severe forms.

 

Research has shown that iatrogenic botulism can occur after any amount of botulinum toxin injections, even when it is provided by licensed, experienced injecting doctors and nurses. The toxin can spread via unintentional injection into a blood vessel, through diffusion to adjacent muscle tissue, or via a process called retrograde axonal transport.

 

Because this disease is often misdiagnosed, and there are no readily available tests or treatments for botulism, sufferers are often left without adequate answers or medical care. 

 

Living through iatrogenic botulism can be life-altering, harrowing, and debilitating, and our goal is to offer resources and support in order to make the journey a little less isolating.​​​