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Welcome!
 

IatrogenicBotulism.com is a source for education, resources, and support related an under-researched and often misdiagnosed disease: iatrogenic botulism.

 

Iatrogenic Botulism is botulism that occurs after botulinum toxin injections, including Botox, Dysport, Xeomin, Daxxify, Jeuveau, and Letybo (U.S. products). Botulism is nervous system disruption that occurs when botulinum toxin spreads away from the injection site into the peripheral nervous system (PNS) and/or central nervous system (CNS). Botulism can occur in mild, moderate, or severe forms.

 

Research has shown that iatrogenic botulism can occur after any amount of botulinum toxin injections, even when it is provided by licensed, experienced injecting doctors and nurses. The toxin can spread via unintentional injection into a blood vessel, through diffusion to adjacent muscle tissue, or via a process called retrograde axonal transport.

 

Because this disease is often misdiagnosed, and there are no readily available tests or treatments for botulism, sufferers are often left without adequate answers or medical care. 

 

Living through iatrogenic botulism can be life-altering, harrowing, and debilitating, and our goal is to offer resources and support in order to make the journey a little less isolating.​​​

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My new PDF "Recovering from Botulism" can be downloaded, printed and shared with friends, family, and medical professionals. The goal of this PDF is to serve as a well-organized, easy-to-read guide for learning more about botulism recovery - including possible symptoms, how the body heals from botulism, and strategies that may help manage symptoms. Most importantly, I want to emphasize that recovery from botulism depends on healing the whole body, not just treating isolated symptoms. As many of you know, this illness can affect not only physical health, but also psychological, emotional, and social well-being. I believe all of these aspects should be addressed as part of the recovery process.

Available Now
 

Take the Survey
 

If you have suffered from adverse effects following botulinum toxin injections, please consider taking our survey. The purpose of the survey is to gather real time data on iatrogenic botulism sufferers' symptoms and practices/supplements/etc. that helped people heal. The information is completely anonymous, and will be shared with our Botox Side Effects - Iatrogenic Botulism support group, to hopefully help fellow sufferers in their healing journeys.

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metoxpretty@gmail.com

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© 2025 by Megan McCue. All rights reserved.

None of the information listed on this website is medical advice. It is not intended to diagnose, treat, or cure any disease.

Work with a trusted healthcare provider before beginning any new medications or supplements.

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